I have been really, really reluctant to share this because- well- it's hard to share stuff like this. Plus, I sort of don't know how this story ends, but I feel the need to share it because other people sharing their experiences and showing their vulnerability has helped me so very much.
I have been suffering with Hashimoto's disease (an autoimmune disease where your body attacks the thyroid and it results in an underactive thyroid) for over two years, basically since I got pregnant with Pearl. It took a while for the doctors to figure out what was up, a while longer to get the dosing right for my thyroid hormone, and then a long while for me to figure out that just taking thyroid medication wasn't going to be enough to make me feel better. I wasn't tested for the Hashimoto's antibodies for over a year, and I will admit to coming home and crying when I realized that this was a permanent, lifetime problem and not something that was going to resolve on its own. It also took me over a year to realize that the thyroid affects so much of what goes on in your body and that it was messing with my entire mind/body system. For example, during this time I was also having crippling anxiety, so much so that I could barely get out of bed in the morning. I would get scared when the phone rang, or when I had to get the mail, or when I would have to pack lunches or go grocery shopping. Basically every day life became terrifying. Add to that that I was living in the middle east and things were sort of crazy anyway, I was barely making through every day. I started doing breathing exercises and yoga to control my anxiety, which helped a lot, but I didn't realize that most of what was causing the anxiety was tied to the hypothyroidism. I felt like if I was just stronger or just chose not to feel anxious or if I "prayed it away" I would feel better. My whole body would go tingly, a lot of times without an apparent trigger and I was terrified of every day. Basically I would have major anxiety if I had to do anything other than sit in my house and do nothing :). But even being in my own house gave me anxiety because then I would feel anxious about the fact that I just couldn't do everything I needed to do.
Then I started to have panic attacks. I think that's the scariest thing that's ever happened to me. To be completely out of control of your mind and body for even a few minutes is like being in some sort of horror movie. I actually couldn't even control my breathing for those few minutes and felt like I was going to suffocate. It's hard to even go back in my mind right now and think about it. So incredibly scary. A couple of friends came over one morning just after I had my first panic attack- I was still in bed and had forgotten they were coming over and gave them a good scare when I wasn't answering the door- and one of them was married to a doctor and called him and had him talk to me. He told me not to be ashamed to get the help I needed. He told me not to feel weak or like if I just prayed I would feel better- sometimes you actually need real help. And he was right. It was a hormonal, chemical imbalance and just like any sickness it needed to be treated. I realized that I had prejudices against mental illness I didn't know were there. I was always very generous in my mind to other people suffering with mental illness, but when it was me I felt weak and wondered why I couldn't just pull myself together.
On top of all that, my hair was falling out, I was completely exhausted- like so tired my body would actually ache- and I just felt all around terrible. Sometimes I would laugh when people would give me compliments like "Oh I don't know how you do it with 6 kids, you make it look so easy." HA! I am barely surviving and I am just fooling you with a smile on my face! I would always try to get dressed and look put together, because honestly that does make me feel a little better, but I really fooled everyone but my very closest friends. It actually amazed me how easy it was to fool people.
Anyways, like an idiot, I googled myself into oblivion trying to figure out what was wrong with me, since progress with the doctors was just so slow. It's actually part of the reason we ended up traveling so much after Pearl was born - I thought, well I need to do a ton of fun things with my kids while I still can. Who knows how long I will have control of my whole body, or even how long I will be alive. So then I got a crazy case of health anxiety, getting scared if any little things went wrong with my body. In a way it was kind of good because I have really started to "live like I was dying." I have really taken every single day of good health as a gift and tried to use my time on earth more wisely.
Once we got back to the US I was even tested for MS since I was exhibiting a similar set of symptoms and of course that made my anxiety way worse. I was so scared of what might be happening to me. At one of my neurologist appointments the doctor realized that while a lot of my tingling issues were coming from my anxiety, coincidentally I had an undiagnosed neck injury from the two car accidents I was in in 2014 that was causing tingling down one side of my body. It's funny how that made me feel better... Like OH! You just have a neck injury, no big deal. HA. That relieved a lot of my health anxiety.
I then went to see an endocrinologist to see if I could get better treatment for my thyroid problems. He literally said to me, "Well, are you taking your thyroid hormone?" (yes) "Well, then that's all you can do." I'm sorry, what? I just couldn't accept that that was how my life was going to be, and that I would just have to be exhausted and muscle through every day. So I started reading books and doing research to see what else I could do to help myself. In the book I was reading they said to get tested for very specific vitamin deficiencies common in thyroid patients. So I made an appointment with my doctor and asked for the vitamin tests and she literally said, "There's no point." GAH! I asked if there were any vitamins or diet changes that might help me and she basically said what the other guy said, "Just take your thyroid pills." ARGH!
So I just kept researching trying to find anything that could help me feel better. I started taking a set of vitamins in January of this year that I read about in a Thyroid book and they actually helped a lot. Another friend recommended some herbs and vitamins that had helped her, and those helped some, too. I would say I was feeling about 80% of normal. Which was a whole lot better than I had felt in a long time!!!
In July I saw this article:
http://hypothyroidmom.com/anxiety-panic-attacks-depression-mood-swings-the-thyroid-roller-coaster-ride/
Out of desperation I went through and ordered every vitamin and supplement in this article. I also take vitamin D because my levels are low, a probiotic, and Turmeric because it's awesome. Anyways, this combination of vitamins has been a game changer for me. (Aside: I'm trying out ordering my vitamins from another company and I'll follow up if that works out for me)... I would say I'm BACK! My hair is growing back (I have to use extra gel to tame the one inch long fuzz, haha). I don't NEED a nap almost ever, unless I want one, and I'm interested in life again. I actually want to do extra things now, as in more than just bare survival. Like for a long time I wouldn't want to make baked goods for my kids because it just sounded too hard. That's not me! It struck me one day last week when I just decided to make muffins for the kids that I hadn't done that in MONTHS. I love baking and now I actually feel like doing it again, among other things. I just trained for and rode a 100K (62 mile) endurance bike ride and I felt GOOD! I wasn't even exhausted that day - most of the others I rode the race with that day went home and took a big nap! I want to do the 100 mile ride next year. I signed up for another ride in October (51 miles in the hill country!). I exercise every day now, and I don't have to come home a sleep the afternoon away to recover! Most days I ride about 13 miles a day just taking my kids to and from school. I joined a boot camp. I signed up for swimming lessons (which I haven't started yet, but I will :)) I joined choir again. I'm doing it all and I feel awesome. Every once in a while I'll have a little tingle of anxiety, but I'm able to deal with it so much better with various coping techniques and a big part of the physical/chemical component of it just seems to be gone. Anyways, it's been a huge deal for me.
The last struggle (and I won't go into this too much because it will turn into a rant) is that I still weigh about 20 pounds more than normal. And you know what? That's ok. I am healthy and I am happy again and yes, my thyroid has messed with my metabolism and that is a little frustrating, but contrary to what society will tell you, it's not a sin to carry a little fat around on you. Being healthy is what matters and I refuse to feel bad about my body when it is such an amazing gift that can do so much. There is so much societal pressure to look a certain way, but that just doesn't matter. I often let myself get pulled into the mindset that there's something wrong with me if I'm not thin, but I've started to tell my body thank you for everything it does for me, and that I love her and that helps me a lot. I eat well, I exercise every day, and I have a beautiful, strong, healthy body. I am who I am, I look how I look, and I'm awesome.
Whew. That was a bit of a novel, but I hope it can help someone suffering with similar problems.
Love to all,
Melissa
I have been suffering with Hashimoto's disease (an autoimmune disease where your body attacks the thyroid and it results in an underactive thyroid) for over two years, basically since I got pregnant with Pearl. It took a while for the doctors to figure out what was up, a while longer to get the dosing right for my thyroid hormone, and then a long while for me to figure out that just taking thyroid medication wasn't going to be enough to make me feel better. I wasn't tested for the Hashimoto's antibodies for over a year, and I will admit to coming home and crying when I realized that this was a permanent, lifetime problem and not something that was going to resolve on its own. It also took me over a year to realize that the thyroid affects so much of what goes on in your body and that it was messing with my entire mind/body system. For example, during this time I was also having crippling anxiety, so much so that I could barely get out of bed in the morning. I would get scared when the phone rang, or when I had to get the mail, or when I would have to pack lunches or go grocery shopping. Basically every day life became terrifying. Add to that that I was living in the middle east and things were sort of crazy anyway, I was barely making through every day. I started doing breathing exercises and yoga to control my anxiety, which helped a lot, but I didn't realize that most of what was causing the anxiety was tied to the hypothyroidism. I felt like if I was just stronger or just chose not to feel anxious or if I "prayed it away" I would feel better. My whole body would go tingly, a lot of times without an apparent trigger and I was terrified of every day. Basically I would have major anxiety if I had to do anything other than sit in my house and do nothing :). But even being in my own house gave me anxiety because then I would feel anxious about the fact that I just couldn't do everything I needed to do.
Then I started to have panic attacks. I think that's the scariest thing that's ever happened to me. To be completely out of control of your mind and body for even a few minutes is like being in some sort of horror movie. I actually couldn't even control my breathing for those few minutes and felt like I was going to suffocate. It's hard to even go back in my mind right now and think about it. So incredibly scary. A couple of friends came over one morning just after I had my first panic attack- I was still in bed and had forgotten they were coming over and gave them a good scare when I wasn't answering the door- and one of them was married to a doctor and called him and had him talk to me. He told me not to be ashamed to get the help I needed. He told me not to feel weak or like if I just prayed I would feel better- sometimes you actually need real help. And he was right. It was a hormonal, chemical imbalance and just like any sickness it needed to be treated. I realized that I had prejudices against mental illness I didn't know were there. I was always very generous in my mind to other people suffering with mental illness, but when it was me I felt weak and wondered why I couldn't just pull myself together.
On top of all that, my hair was falling out, I was completely exhausted- like so tired my body would actually ache- and I just felt all around terrible. Sometimes I would laugh when people would give me compliments like "Oh I don't know how you do it with 6 kids, you make it look so easy." HA! I am barely surviving and I am just fooling you with a smile on my face! I would always try to get dressed and look put together, because honestly that does make me feel a little better, but I really fooled everyone but my very closest friends. It actually amazed me how easy it was to fool people.
Anyways, like an idiot, I googled myself into oblivion trying to figure out what was wrong with me, since progress with the doctors was just so slow. It's actually part of the reason we ended up traveling so much after Pearl was born - I thought, well I need to do a ton of fun things with my kids while I still can. Who knows how long I will have control of my whole body, or even how long I will be alive. So then I got a crazy case of health anxiety, getting scared if any little things went wrong with my body. In a way it was kind of good because I have really started to "live like I was dying." I have really taken every single day of good health as a gift and tried to use my time on earth more wisely.
Once we got back to the US I was even tested for MS since I was exhibiting a similar set of symptoms and of course that made my anxiety way worse. I was so scared of what might be happening to me. At one of my neurologist appointments the doctor realized that while a lot of my tingling issues were coming from my anxiety, coincidentally I had an undiagnosed neck injury from the two car accidents I was in in 2014 that was causing tingling down one side of my body. It's funny how that made me feel better... Like OH! You just have a neck injury, no big deal. HA. That relieved a lot of my health anxiety.
I then went to see an endocrinologist to see if I could get better treatment for my thyroid problems. He literally said to me, "Well, are you taking your thyroid hormone?" (yes) "Well, then that's all you can do." I'm sorry, what? I just couldn't accept that that was how my life was going to be, and that I would just have to be exhausted and muscle through every day. So I started reading books and doing research to see what else I could do to help myself. In the book I was reading they said to get tested for very specific vitamin deficiencies common in thyroid patients. So I made an appointment with my doctor and asked for the vitamin tests and she literally said, "There's no point." GAH! I asked if there were any vitamins or diet changes that might help me and she basically said what the other guy said, "Just take your thyroid pills." ARGH!
So I just kept researching trying to find anything that could help me feel better. I started taking a set of vitamins in January of this year that I read about in a Thyroid book and they actually helped a lot. Another friend recommended some herbs and vitamins that had helped her, and those helped some, too. I would say I was feeling about 80% of normal. Which was a whole lot better than I had felt in a long time!!!
In July I saw this article:
http://hypothyroidmom.com/anxiety-panic-attacks-depression-mood-swings-the-thyroid-roller-coaster-ride/
Out of desperation I went through and ordered every vitamin and supplement in this article. I also take vitamin D because my levels are low, a probiotic, and Turmeric because it's awesome. Anyways, this combination of vitamins has been a game changer for me. (Aside: I'm trying out ordering my vitamins from another company and I'll follow up if that works out for me)... I would say I'm BACK! My hair is growing back (I have to use extra gel to tame the one inch long fuzz, haha). I don't NEED a nap almost ever, unless I want one, and I'm interested in life again. I actually want to do extra things now, as in more than just bare survival. Like for a long time I wouldn't want to make baked goods for my kids because it just sounded too hard. That's not me! It struck me one day last week when I just decided to make muffins for the kids that I hadn't done that in MONTHS. I love baking and now I actually feel like doing it again, among other things. I just trained for and rode a 100K (62 mile) endurance bike ride and I felt GOOD! I wasn't even exhausted that day - most of the others I rode the race with that day went home and took a big nap! I want to do the 100 mile ride next year. I signed up for another ride in October (51 miles in the hill country!). I exercise every day now, and I don't have to come home a sleep the afternoon away to recover! Most days I ride about 13 miles a day just taking my kids to and from school. I joined a boot camp. I signed up for swimming lessons (which I haven't started yet, but I will :)) I joined choir again. I'm doing it all and I feel awesome. Every once in a while I'll have a little tingle of anxiety, but I'm able to deal with it so much better with various coping techniques and a big part of the physical/chemical component of it just seems to be gone. Anyways, it's been a huge deal for me.
The last struggle (and I won't go into this too much because it will turn into a rant) is that I still weigh about 20 pounds more than normal. And you know what? That's ok. I am healthy and I am happy again and yes, my thyroid has messed with my metabolism and that is a little frustrating, but contrary to what society will tell you, it's not a sin to carry a little fat around on you. Being healthy is what matters and I refuse to feel bad about my body when it is such an amazing gift that can do so much. There is so much societal pressure to look a certain way, but that just doesn't matter. I often let myself get pulled into the mindset that there's something wrong with me if I'm not thin, but I've started to tell my body thank you for everything it does for me, and that I love her and that helps me a lot. I eat well, I exercise every day, and I have a beautiful, strong, healthy body. I am who I am, I look how I look, and I'm awesome.
Whew. That was a bit of a novel, but I hope it can help someone suffering with similar problems.
Love to all,
Melissa
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